National network. Founded 1981. Provides support for people with
ichthyosis through networking with others. Public and professional
education. Supports research on treatment and cure. Advocacy issues,
quarterly newsletter, publications and bi-annual conference. Dues
US/$40; Int'l/$50.
Write:
F.I.R.S.T.
1364 Welsh Rd., G2
North Wales, PA 19454
Voice: 1-800-545-3286 or 215-619-0670
Fax: 215-619-0780
Website: http://www.scalyskin.org
E-mail: info@scalyskin.org
Verified: 4/25/2007
The above information was "verified" as correct on the date at the end of each entry. Since American
Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for
these organizations can change, it is not possible to keep every entry in American Self-Help Group
Clearinghouse database completely current and accurate. Please check with the organizations listed
for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group
Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse
at: admin@selfhelpgroups.org
Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.